Contemporary Nursing

Objective To explore the qualitative study of disease progression or recurrence fear in middle-aged and young patients with myasthenia gravis (MG). Methods The phenomenological research method was used for the study. Eight middle-aged and young MG patients admitted to our hospital from March 2023 to June 2024 were selected, and the interview data of the eight patients were sorted and summarized according to the Colaizzi 7-step analysis method. Results A total of four themes were extracted from the interview data, including fear caused by insufficient disease awareness, fear exacerbated by uncertainty in treatment prognosis, fear amplified by lack of social support, and fear reinforced by decreased daily living abilities. Conclusion Middle aged and young MG patients generally have a fear of disease aggravation or recurrence, which is mainly influenced by multidimensional factors such as patients' own disease cognition, treatment prognosis, social support, and living status. Targeted intervention measures need to be provided to improve patients' negative psychology and enhance their quality of life.

Middle-aged and young people; Myasthenia gravis; Disease aggravation; Fear of recurrence; Qualitative research