Grant Report on mCARE: Mobile-Based Care for Children with Autism Spectrum Disorder (ASD) for Low- and Middle-Income Countries (LMICs)-Journal of Psychiatry and Brain Science-CSCIED科技核心评价数据库-手机版

Grant Report on mCARE: Mobile-Based Care for Children with Autism Spectrum Disorder (ASD) for Low- and Middle-Income Countries (LMICs)

Grant Report on mCARE: Mobile-Based Care for Children with Autism Spectrum Disorder (ASD) for Low- and Middle-Income Countries (LMICs)

ES评分 0 浏览量：1029 下载量：0

全文阅读下载引用收藏

DOI	10.20900/jpbs.20210004
刊名	Journal of Psychiatry and Brain Science JPBS
年，卷(期)	2021, 6(1)
作者	Munirul M. Haque,Masud Rabbani,Dipranjan Das Dipal,Md Ishrak Islam Zarif,Anik Iqbal,Shaheen Akhter,Shahana Parveen,Mohammad Rasel,Golam Rabbani,Faruq Alam,Tanjir Rashid Soron,Syed Ishtiaque Ahmed,Sheikh Iqbal Ahamed*,
作者单位	R.B. Annis School of Engineering, University of Indianapolis, Indianapolis, IN 46227, USA ; Ubicomp Lab, Department of Computer Science, Marquette University, Milwaukee, WI 53233, USA ; Institute of Pediatric Neurodisorder & Autism (IPNA), Bangabandhu Sheikh Mujib Medical University, Dhaka 1000, Bangladesh ; National Institute of Mental Health, Dhaka 1207, Bangladesh ; Neuro-Developmental Disability Protection Trust, Dhaka 1215, Bangladesh ; Telepsychiatry Research and Innovation Network Ltd, Dhaka 1215, Bangladesh ; Department of Computer Science, University of Toronto, Toronto, ON M5S 2E4, Canada ;
Abstract	In low-and-middle-income countries, especially in Bangladesh, Autism Spectrum Disorder (ASD) may be considered an anathema, and social-cultural-financial constraints mean that there are few facilities available for treatment for ASD children. The revolution in the use of the mobile phone (~80%) by the majority of people in Bangladesh in recent years has created an opportunity to improve the overall scenario in the treatment or remote monitoring process for children with ASD. In this grant project, we planned and developed a mobile phone-based system to remotely monitor children with ASD and help their treatment process both at the caregiver and care practitioner ends. In developing mCARE, we utilized a Remote Experience Sampling Method to design, build, deploy, and study the impact of mobile based monitoring and treatment of children with ASD in Bangladesh. We developed a mobile application using the Experience Sampling Method (ESM). A caregiver routinely reported the behavioral and milestone parameters of their children with ASD. The care practitioners monitored the longitudinal data that helped them in decision-making in a particular patient’s treatment process. The Value Sensitive Design (VSD) was used to make this mobile application more user friendly with consideration of the local economic, social, and cultural values in Bangladesh.
KeyWord	Autism Spectrum Disorder (ASD); Remote Experience Sampling Method (ESM); Value Sensitive Design (VSD); Mobile-Based Care (mCARE)
基金项目
页码	-

参考文献
相关文献

1.Centers for Disease Control and Prevention. CDC—Facts about Autism Spectrum Disorders. Available from: http://www.cdc.gov/ncbddd/autism/data.html. Accessed 2016 Apr 28.

2.Lai M, Lombardo MV, Baron-Cohen S. Autism. Lancet 2014;383:896–910. doi: 10.1016/S0140-6736(13)61539-1

3.Golden R, Wardlaw T. Monitoring Child Disability in Developing Countries: Results from the Multiple Indicator Cluster Surveys. New York (US): UNICEF, University of Wisconsin–Madison; 2008.

4.Rabbani MG, Alam MF, Ahmed HU, Sarkar M, Islam MS, Anwar N, et al. Prevalence of mental disorders, mental retardation, epilepsy and substance abuse in children. Bang J Psychiatry. 2009;23(1):1-54.

5.Mullick MSI, Goodman R. The prevalence of psychiatric disorders among 5–10-year olds in rural, urban and slum areas in Bangladesh. Soc Psychiatry Psychiatr Epidemiol. 2005;40(8):663-671.

6.Autism Tracker Pro: Track and Analyze ASD. Available: from: https://itunes.apple.com/us/app/autism-tracker-pro-track-and-analyze-asd/id478225574?mt=8. Accessed 2017 Aug 10.

7.Autism Spectrum Disorder. Available from: https://www.nhsinform.scot/illnesses-and-conditions/brain-nerves-and-spinal-cord/autistic-spectrum-disorder-asd. Accessed 2020 Jul 20.

8.National Institute of Mental Health. Autism Spectrum Disorders (Pervasive Developmental Disorders). Available from: https://www.ninds.nih.gov/Disorders/All-Disorders/Pervasive-Developmental-Disorders-Information-Page#:~:text=Autism%20(a%20developmental%20brain%20disorder,Disintegrative%20Disorder%2C%20and%20Rett's%20Syndrome. Accessed 2021 Feb 24.

9.Aman MG. Management of hyperactivity and other acting-out problems in patients with autism spectrum disorder. Semin Pediatr Neurol. 2004;11:3.

10.Couturier JL, Speechley KN, Steele M, Norman R, Stringer B, Nicolson R. Parental perception of sleep problems in children of normal intelligence with pervasive developmental disorders: prevalence, severity, and pattern. J Am Acad Child Adolesc Psychiatry. 2005 Aug;44(8):815-22.

11.Soron TR. Autism, Stigma and Achievements of Bangladesh. J Psychiatry. 2015;18(5). doi: 10.4172/2378-5756.1000320

12.Das D. Towards Developing a Mobile-Based Care for Children with ASD Using Remote Experience Sampling Method (mCARE)
[dissertation]. Milwaukee (US): Marquette University; 2020.

13.Baker, Zoë, Bellows B, Bach R, Warren C. Barriers to obstetric fistula treatment in low‐income countries: a systematic review. Trop Med Int Health 2017;22(8):938-959.

14.Ferdousi N. Challenges to Effective Child Correctional Governance in Bangladesh. Nat Judic Acad Law J. 2016:10:195.

15.Dziegielewski S. The changing face of health care social work: Professional practice in managed behavioral health care. New York (US): Springer Publishing Company; 2003.

16.Klein TJ. Al-Ghasani T, Al-Ghasani M, Akbar A, Tang E, Al-Farsi Y. A mobile application to screen for autism in Arabic-speaking communities in Oman. Lancet Global Health. 2015;3(Supplement 1):S15.

17.Ali Samadi S, Roy McConkey R. Autism in Developing Countries: Lessons from Iran: 2011. 2011. https://doi.org/10.1155/2011/145359

18.Autism Tracker Pro. Available from: https://apps.apple.com/us/app/autism-tracker-pro-track-and-analyze-asd/id478225574. Accessed: 2020 Oct 08.

19.Fombonne E. Epidemiology of Pervasive Developmental Disorders. Pediatric Res. 2009;65(6):591-8. https://doi.org/10.1203/PDR.0b013e31819e7203

20.Fombonne E. The Changing Epidemiology of Autism. J Appl Res Intellect Disabil. 2005;18(4):281-94. https://doi.org/10.1111/j.1468-3148.2005.00266.x

21.Bardhan S, Monjur Morshed Mridha GM, Ahmed E, Ullah MA, Ahmed HU, Akhter S, et al. 2016. Autism Barta—A smart device based automated autism screening tool for Bangladesh. In Proceedings of 2016 5th International Conference on Informatics, Electronics and Vision (ICIEV); 2016 May 13-14; Dhaka, Bangladesh. New York (US): IEEE; 2016. p. 602-7.

22.Dumont-Mathieu T, Fein D. Screening for autism in young children: The Modified Checklist for Autism in Toddlers (M‐CHAT) and other measures. Ment Retard Dev Disabil Res Rev. 2005;11(3):253-62.

23.Khan NZ, Muslima H, Begum D, Shilpi AB, Akhter S, Bilkis K, et al. Validation of rapid neurodevelopmental assessment instrument for under-two-year-old children in Bangladesh. Pediatrics. 2010 Apr;125(4):e755-62.

24.Rahman MM, Ferdous SM, Ahmed SI. Increasing intelligibility in the speech of the autistic children by an interactive computer game. 2010 IEEE International Symposium on Multimedia; 2010 Dec 13-15; Taichuan, China. New York (US): IEEE; 2010.

25.Anwar A, Rahman MM, Ferdous SM, Anik SA, Ahmed SI. A computer game-based approach for increasing fluency in the speech of the autistic children. 2011 IEEE 11th International Conference on Advanced Learning Technologies; 2011 Jul 6-8; Athens, USA. New York (US): IEEE; 2011.

26.Hassan AZ, Zahed BT, Zohora FT, Moosa JM, Salam T, Rahman MM, et al. Developing the concept of money by interactive computer games for autistic children. 2011 IEEE international symposium on multimedia; 2011 Dec 5-7; Dana Point, USA. New York (US): IEEE; 2011.

27.Ketterl M, Ferdous SM, Ahmed SI, Anwar A. Speech development of autistic children by interactive computer games. Interact Technol Smart Educ. 2011;8(4):208-23.

28.Hoefman R, Payakachat N, van Exel J, Kuhlthau K, Kovacs E, Pyne J, et al. Caring for a child with autism spectrum disorder and parents’ quality of life: application of the CarerQol. J Autism Dev Disord. 2014 Aug;44(8):1933-45.

29.Ehsan U, Sakib N, Haque MM, Soron T, Saxena D, Ahamed SI, et al. Confronting autism in urban Bangladesh: unpacking infrastructural and cultural challenges. EAI Endorsed Transactions on Pervasive Health Technol. 2018;4(14):e5.

30.Khanna R, Madhavan SS, Smith MJ, Patrick JH, Tworek C, Becker-Cottrill B. Assessment of health-related quality of life among primary caregivers of children with autism spectrum disorders. J Autism Dev Disord. 2011 Sep;41(9):1214-27.

31.Hamlyn-Wright S, Draghi-Lorenz R, Ellis J. Locus of control fails to mediate between stress and anxiety and depression in parents of children with a developmental disorder. Autism. 2007;11(6): 489-501.

32.Bromley J, Hare DJ, Davison K, Emerson E. Mothers supporting children with autistic spectrum disorders: Social support, mental health status and satisfaction with services. Autism. 2004:8(4):409-23.

33.Kuhlthau K, Kahn R, Hill KS, Gnanasekaran S, Ettner SL. The well-being of parental caregivers of children with activity limitations. Matern Child Health J. 2010 Mar;14(2):155-63.

34.Kuhlthau K, Hill KS, Yucel R, Perrin JM. Financial burden for families of children with special health care needs. Matern Child Health J. 2005:9(2):207-18.

35.Ayres KM, Mechling L, Sansosti FJ. The use of mobile technologies to assist with life skills/independence of students with moderate/severe intellectual disability and/or autism spectrum disorders: Considerations for the future of school psychology. Psychol Sch. 2013:50(3):259-71.

36.Khan A, Kun L, Madden J. Mobile Aid to Assist with Care Decisions in Children with Autism Spectrum Disorder (ASD). J Healthcare Eng. 2018. https://doi.org/10.1155/2018/9703101

37.Goldstein H. Communication intervention for children with autism: A review of treatment efficacy. J Autism Dev Disord. 2002:32(5):373-96.

38.Odom SL, Thompson JL, Hedges S, Boyd BA, Dykstra JR, Duda MA, et al. Technology-aided interventions and instruction for adolescents with autism spectrum disorder. J Autism Dev Disord. 2015;45(12):3805-19.

39.Soron TR. Acceptance of a Mobile APP for Autism Assessment in Bangladesh. J Intellect Disabil Res. 2019;63(7);661-2.

40.Ntalindwa T, Soron TR, Nduwingoma M, Karangwa E, White R. The Use of Information Communication Technologies Among Children with Autism Spectrum Disorders: Descriptive Qualitative Study. JMIR Pediatr Parent. 2019;2(2):e12176.

41.Friedman B. Value-sensitive design. Interactions. 1996;3(6):16-23.

42.Fogg BJ. Creating persuasive technologies: an eight-step design process. In Proceedings of the 4th international conference on persuasive technology; 2009 Apr; Claremont, USA. New York (US): ACM; 2009. p. 44.

43.Tulshan A, Nataasha R. Krisha: An Interactive Mobile Application for Autism Children. In International Conference on Advances in Computing and Data Sciences. Singapore: Springer; 2019.

44.Hani H, Abu-Wandi R. DISSERO Mobile Application for AUTISTIC Childrenʼs. In Proceedings of the international conference on intelligent information processing, security and advanced communication; 2015 Nov; Batna, Algeria; New York (US): Association for Computing Machinery; 2015.

45.Aburukba R, et al. AutiAid: A learning mobile application for autistic children. 2017 IEEE 19th International Conference on e-Health Networking, Applications and Services (Healthcom); 2017 Oct 12-15; Dalian, China. New York (US): IEEE; 2017.

46.Schieve LA, Gonzalez V, Boulet SL, Visser SN, Rice CE, Braun KVN, Boyle CA. (2012). Concurrent medical conditions and health care use and needs among children with learning and behavioral developmental disabilities, National Health Interview Survey, 2006–2010. Res Dev Disabil. Mar-Apr 2012;33(2):467-76.

47.Mobile Phone Subscribers In Bangladesh March, 2019. Available from: http://www.btrc.gov.bd/content/mobile-phone-subscribers-bangladesh-march-2019. Accessed 2020 Aug 12.

48.Satu MS, Azad MS, Haque MF, Imtiaz SK, Akter T, Barua L, et al. Prottoy: A Smart Phone Based Mobile Application to Detect Autism of Children in Bangladesh. 2019 4th International Conference on Electrical Information and Communication Technology (EICT); 2019 Dec 20-22; Khulna, Bangladesh. New York (US): IEEE; 2019.

49.Kim JW, Nguyen T-Q, Gipson SY-MT, Shin AL, Torous J. Smartphone apps for autism spectrum disorder—Understanding the evidence. J Technol Behav Sci. 2018;3(1):1-4.

50.Technology and Autism. Available from: https://www.autismspeaks.org/technology-and-autism. Accessed 2020 Aug 19.

51.Bangerter A, Manyakov NV, Lewin D, Boice M, Skalkin A, Jagannatha S, et al. Caregiver daily reporting of symptoms in autism spectrum disorder: observational study using web and mobile apps. JMIR Ment Health. 2019;6(3):e11365.

52.Baio J, Wiggins L, Christensen DL, Maenner MJ, Daniels J, Warren Z, et al. Prevalence of autism spectrum disorder among children aged 8 years—autism and developmental disabilities monitoring network, 11 sites, United States, 2014. MMWR Surveill Summ. 2018;67(6):1.

53.Akhter S, Hussain AHME, Shefa J, Kundu GK, Rahman F, Biswas A. Prevalence of Autism Spectrum Disorder (ASD) among the children aged 18-36 months in a rural community of Bangladesh: A cross sectional study. F1000Res. 2018;7:424.

54.Sharmin M, Hossain MM, Saha A, Das M, Maxwell M, Ahmed S. From research to practice: informing the design of autism support smart technology. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems; 2018 Apr; Montreal, Canada; New York (US): Association for Computing Machinery; 2018.

55.Haque MM, Kawsar F, Adibuzzaman M, Uddin MM, Ahamed SI, Love R, et al. e-ESAS: Evolution of a participatory design-based solution for breast cancer (BC) patients in rural Bangladesh. Pers Ubiquitous Comput. 2015;19(2):395-413.

56.Haque M, Kawsar F, Adibuzzaman M, Ahamed S, Love R, Dowla R, et al. Findings of e-ESAS: a mobile based symptom monitoring system for breast cancer patients in rural Bangladesh. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems; New York (US): ACM; 2012. p. 899-908.

57.System Usability Scale (SUS). Available from: https://www.usability.gov/how-to-and-tools/methods/system-usability-scale.html. Accessed 2021 Feb 24.

58.Video Conferencing, Web Conferencing, Webinars, Screen Sharing. Available from: https://zoom.us/. Accessed 2020 Aug 13.

59.Confidence Intervals. Available from: https://www.mathsisfun.com/data/confidence-interval.html. Accessed 2012 Feb 11.

引用本文

Munirul M. Haque,Masud Rabbani,Dipranjan Das Dipal,Md Ishrak Islam Zarif,Anik Iqbal,Shaheen Akhter,Shahana Parveen,Mohammad Rasel,Golam Rabbani,Faruq Alam,Tanjir Rashid Soron,Syed Ishtiaque Ahmed,Sheikh Iqbal Ahamed*. Grant Report on mCARE: Mobile-Based Care for Children with Autism Spectrum Disorder (ASD) for Low- and Middle-Income Countries (LMICs), Journal of Psychiatry and Brain Science. 2021; 6; (1). https://doi.org/10.20900/jpbs.20210004.

文献评论

相关学者

相关机构