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Connections that Care: WhatsApp as a Support Space for Stroke Survivors

Connections that Care: WhatsApp as a Support Space for Stroke Survivors

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DOI	10.20900/agmr20250020
刊名	Advances in Geriatric Medicine and Research AGMR
年，卷(期)	2025, 7(3)
作者	Micaela Rodrigues,Inês dos Santos Silva,Luísa Soares*,
作者单位	Faculty of Arts and Humanities, Universidade da Madeira, Madeira 9020-105, Portuga ; 2256c Health, Ltd., Lisboa 1269-039, Portugal ; Faculty of Arts and Humanities, Universidade da Madeira, Madeira 9020-105, Portugal ;
摘要	Stroke is one of the leading causes of death worldwide, with consequences that impact physical, mental and emotional health, and social life of survivors. Social support is fundamental to promote rehabilitation and quality of life of stroke survivors. Objective: investigate the impact of therapeutic groups in promoting social support and well-being among stroke survivors, as well as to understand how therapeutic writing, mediated by WhatsApp, can contribute to strengthening group dynamics. Methods: a systematic literature review in different databases, on B-on, Pubmed, and Google Scholar. Results: therapeutic groups are crucial in improving quality of life and providing emotional support, self-reflection, and interpersonal relationships. Digital technologies, such as WhatsApp, are effective in facilitating communication and mitigating social isolation, benefiting survivors and their caregivers. At the same time, Therapeutic Writing has proven to be a valuable strategy for emotional expression, contributing to resilience and intragroup cohesion. Conclusion: Integrating digital technologies in rehabilitation is promising, offering new possibilities for inclusive and effective interventions. Innovative and multidisciplinary approaches that use accessible technologies and maximize the support and well-being of stroke survivors and caregivers are one of the avenues for future research.
Abstract	Stroke is one of the leading causes of death worldwide, with consequences that impact physical, mental and emotional health, and social life of survivors. Social support is fundamental to promote rehabilitation and quality of life of stroke survivors. Objective: investigate the impact of therapeutic groups in promoting social support and well-being among stroke survivors, as well as to understand how therapeutic writing, mediated by WhatsApp, can contribute to strengthening group dynamics. Methods: a systematic literature review in different databases, on B-on, Pubmed, and Google Scholar. Results: therapeutic groups are crucial in improving quality of life and providing emotional support, self-reflection, and interpersonal relationships. Digital technologies, such as WhatsApp, are effective in facilitating communication and mitigating social isolation, benefiting survivors and their caregivers. At the same time, Therapeutic Writing has proven to be a valuable strategy for emotional expression, contributing to resilience and intragroup cohesion. Conclusion: Integrating digital technologies in rehabilitation is promising, offering new possibilities for inclusive and effective interventions. Innovative and multidisciplinary approaches that use accessible technologies and maximize the support and well-being of stroke survivors and caregivers are one of the avenues for future research.
关键词	stroke survivors; therapeutic writing; mobile multimedia applications; social support; therapeutic groups
KeyWord	stroke survivors; therapeutic writing; mobile multimedia applications; social support; therapeutic groups
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1.Garg D, Agarwal A, Srivastava MVP, Vishnu VY. Use of social media in stroke: A systematic review. Ann Indian Acad Neurol. 2023;26(3):206-12. doi: 10.4103/aian.aian_58_23.
2.Feigin VL, Brainin M, Norrving B, Martins S, Sacco RL, Hacke W, et al. World Stroke Organization (WSO): Global stroke factsheet. Int. J Stroke. 2022;17(1):18-29.
3.Instituto Nacional de Estatística. Causas de Morte 2022. 2024 May 16. Available from: https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_destaques&DESTAQUESdest_boui=646027025&DESTAQUESmodo=2. Accessed on 20 Oct 2024.
4.Direção Regional de Estatística da Madeira. Estatísticas da saúde da RAM 2021
[PDF]. Madeira Estatística. 2023. Available from: https://estatistica.madeira.gov.pt/download-now/social/saude-pt/2015-11-11-15-01-45/saude-publicacoes-pt/send/38-saude-publicacoes/16099-estatisticas-da-saude-da-ram-2021-pdf.html. Accessed on 28 Aug 2025.
5.Ellingsen AE, Wilhelmsen I. Disease anxiety among medical students and law students. Tidsskr Nor Laegeforen. 2002;122(8):785-7.
6.Portugal AVC. Os Grupos de Ajuda Mútua para Sobreviventes de avc—Guia de Orientação para a sua Criação e Desenvolvimento. 2020. Available from: https://www.portugalavc.pt/_files/ugd/4e8230_d89281bcbff2404b9339430ba2b912ff.pdf. Accessed on 28 Aug 2025.
7.Stroke.pt. Avanços na Investigação sobre avc. Revista Informativa da Sociedade Portuguesa do Acidente Vascular Cerebral nº18. 2021;31. Available from: https://spavc.org/wp-content/uploads/2023/11/STROKE_N17_v4_site.pdf. Accessed on 28 Aug 2025.
8.Opara JA, Jaracz K. Quality of life of post-stroke patients and their caregivers. J Med Life. 2010;3(3):216-20.
9.Langhorne P, Bernhardt J, Kwakkel G. Stroke rehabilitation. Lancet. 2011;377(9778):1693-702. doi: 10.1016/S0140-6736(11)60325-5.
10.Esther CO-W. Responding to lives after stroke: stroke survivors and caregivers going on narrative journeys. Int J Narrative Ther Community Work. 2013;4:38.
11.Santos IS, Soares L, Nicolau H. The role of technology in enhancing emotional wellbeing in recovery: Integrating WhatsApp for mutual support among care communities: A case of stroke survivors. ATSK J Psychol. 2024;4(2):2709-5436.
12.Mukherjee D, Levin RL, Heller W. The cognitive, emotional, and social sequelae of stroke: Psychological and ethical concerns in post-stroke adaptation. Top Stroke Rehabil. 2006;13(4):26-35. doi: 10.1310/tsr1304-26.
13.Kristensen HK, Tistad M, von Koch L, Ytterberg C. The importance of patient involvement in stroke rehabilitation. PLoS ONE. 2016;11(6):e0157149. doi: 10.1371/journal.pone.0157149.
14.Ablewhite J, Nouri F, Whisker A, Thomas S, Jones F, Das Nair R, et al. How do stroke survivors and their caregivers manage post-stroke fatigue? A qualitative study. Clin Rehabil. 2022;36(10):1400-10. doi: 10.1177/02692155221107738.
15.Guo J, Wang J, Sun W, Liu X. The advances of post-stroke depression: 2021 update. J Neurol. 2021;269:1236-49. doi: 10.1007/s00415-021-10597-4.
16.Walsh ME, Galvin R, Loughnane C, Macey C, Horgan NF. Factors associated with community reintegration in the first year after stroke: A qualitative meta-synthesis. Disabil Rehabil. 2015;37:1599-608. doi: 10.3109/09638288.2014.974834.
17.Harrison M, Ryan T, Gardiner C, Jones A. Psychological and emotional needs, assessment, and support post-stroke: A multi-perspective qualitative study. Top Stroke Rehabil. 2017;24(2):119-25. doi: 10.1080/10749357.2016.1196908.
18.Ayaz M, Sarwar H, Yaqoob A, Khan MA. Enhancing knowledge of family caregivers and quality of life of patients with ischemic stroke. Pak J Neurol Surg. 2022;25(4):558-68. doi: 10.36552/pjns.v25i4.625.
19.Massaro AR, Battistella LR. Stroke patients and their caregivers: An interdependent relationship crucial for stroke care. Pacientes com acidente vascular cerebral e seus cuidadores: Uma relação de interdependência para o atendimento pós-hospitalar. Arq Neuropsiquiatr. 2024;82(3):1-2. doi: 10.1055/s-0044-1787170.
20.Roitman Y, Yeshua-Katz D. WhatsApp group as a shared resource for coping with political violence: The case of mothers living in an ongoing conflict area. Mob Media Commun. 2021;10(1):3-20. doi: 10.1177/20501579211021455.
21.Youthline. Therapeutic texting understanding text messaging as an e-therapy. Youthline Digital Health Promotion Strategy. Auckland (New Zealand): Youthline; 2010.
22.Ozkan H, Ambler G, Banerjee G, Chan E, Browning S, Mitchell J, et al. The impact of the UK COVID-19 pandemic on patient-reported health outcomes after stroke: A retrospective sequential comparison. J Neurol. 2022;269(4):1741-50. doi: 10.1007/s00415-021-10819-9.
23.Reid D, Reid F. The expressive and conversational affordances of mobile messaging. Behav Inf Technol. 2007;29:3-22. doi: 10.1089/cpb.2006.9936.
24.Hazelwood A. Using Text Messaging in the Treatment of Eating Disorders. Nurs Times. 2008;104:28-29. Available from: https://www.nursingtimes.net/archive/using-text-messaging-in-the-treatment-of-eating-disorders-08-10-2008/. Accessed on 28 Aug 2025.
25.Boulos KM, Giustini D, Wheeler S. Instagram and WhatsApp in health and healthcare: An overview. Future Internet. 2016;8(3):37. doi: 10.3390/fi8030037.
26.Kaufmann K, Peil C. The mobile instant messaging interview (MIMI): Using WhatsApp to enhance self-reporting and explore media usage in situ. Mob Media Commun. 2020;8(2):229-46. doi: 10.1177/2050157919852392.
27.Sartori AC, Rodrigues Lucena TF, Lopes CT, Picinin Bernuci M, Yamaguchi MU. Educational intervention using WhatsApp on medication adherence in hypertension and diabetes patients: A randomized clinical trial. Telemed E Health. 2020;26(12):1526-32. doi: 10.1089/tmj.2019.0305.
28.Bakar RA, Bakar JA. Understanding support for parents of autistic children through a WhatsApp group. Asia Proc Soc Sci. 2019;4(2):117-20. doi: 10.31580/apss.v4i2.760.
29.Afdal A, Arnaldi A, Nirwana H, Alizamar A, Zikra Z, Ilyas A, et al. Increasing life satisfaction of domestic violence victims through the. Role of supporting group therapy on social media. Int Conf Educ Technol. 2019;372:139-44.
30.Datlen GW, Pandolfi C. Developing an online art therapy group for learning-disabled young adults using WhatsApp. Int J Art Ther. 2020;25(4):192-201. doi: 10.1080/17454832.2020.1845758.
31.Mbada CE, Lateef MA, Ademoyegun AB, Oyewole AI, Maikudi L, Fatoye C, et al. Effect of WhatsApp-based reminders on adherence to a home exercise program. Int J Telemed Clin Pract. 2022;3(4):341-50. doi: 10.1504/ijtmcp.2022.123139.
32.Ruini C, Mortara CC. Writing technique across psychotherapies—from traditional expressive writing to new positive psychology interventions: A narrative review. J Contemp Psychother. 2021;52(1):23-34. doi: 10.1007/s10879-021-09520-9.
33.Allen SF, Wetherell MA, Smith MA. Online writing about positive life experiences reduces depression and perceived stress reactivity in socially inhibited individuals. Psychiatry Res. 2020;284:112697. doi: 10.1016/j.psychres.2019.112697.
34.Figueiras M, Marcelino D. Escrita terapêutica em contextos de saúde: Uma breve revisão. Análise Psicológica. 2008;26(2):327-34. doi: 10.14417/ap.497.
35.Sampaio RF, Mancini MC. Estudos de revisão sistemática: Um guia para síntese criteriosa da evidencia científica. Rev Bras Fisioter. 2007;11(1):83-9. doi: 10.1590/S1413-35552007000100013.
36.Galvão MCB, Ricarte ILM. Revisão sistemática da literatura: Conceituação, produção e publicação. Logeion: Filosofia Da Informação. 2019;6(1):57-73. doi: 10.21728/logeion.2019v6n1.p57-73.
37.Page M, McKenzie J, Bossuyt P, Boutron I, Hoffmann T, Mulrow C, et al. The PRISMA 2020 statement: An updated guideline for reporting systematic reviews. BMJ. 2021;372:n71. doi: 10.1136/bmj.n7.
38.Zhang W, Ye M, Zhou W, Gao Y, Zhou L. Trajectory and predictors of family function in caregivers of stroke survivors: A longitudinal study of the first 6 months after stroke. J Adv Nurs. 2023;80(1):264-74. doi: 10.1111/jan.15749.
39.Bermudo-Gallaguet A, Bielsa-Pascual J, García-Sierra R, Feijoo-Cid M, Arreciado Marañon A, Ariza M, et al. Understanding and enhancing post-stroke recovery: Insights from a nested qualitative study within the MindFit Project randomized clinical trial. Complement Ther Med. 2024;87:103100. doi: 10.1016/j.ctim.2024.103100.
40.Bermudo-Gallaguet A, Ariza M, Dacosta-Aguayo R, Agudelo D, Camins-Vila N, Boldó M, et al. Effects and mechanisms of mindfulness training and physical exercise on cognition, emotional wellbeing, and brain outcomes in chronic stroke patients: Study protocol of the MindFit project randomized controlled trial. Front Aging Neurosci. 2022;14:936077. doi: 10.3389/fnagi.2022.936077.
41.Faria AL, Andrade A, Soares L, Badia SB. Benefits of virtual reality-based cognitive rehabilitation through simulated activities of daily living: A randomized controlled trial with stroke patients. J Neuroeng Rehabil. 2016;13(1):96. doi: 10.1186/s12984-016-0204-z.
42.Hartke RJ, King RB, Denby F. The use of writing groups to facilitate adaptation after stroke. Top Stroke Rehabil. 2007;14(1):26-37. doi: 10.1310/tsr1401-26.
43.Benetti IC, Oliveira WF. O poder terapêutico da escrita: quando o silêncio fala alto. Braz J Ment Health. 2016;8(19):67-76. doi: 10.5007/cbsm.v8i19.69050.
44.Pennebaker J. Writing about emotional experiences as a therapeutic process. Psychol Sci. 1997;8(3):162-6. doi: 10.1111/j.1467-9280.1997.tb00403.x.
45.Pennebaker JW, Graybeal A. Patterns of natural language use: Disclosure, personality, and social integration. Curr Dir Psychol Sci. 2001;10:90-3. doi: 10.1111/1467-8721.00123.
46.Pennebaker J. Theories, therapies, and taxpayers: On the complexities of the expressive writing paradigm. Clin Psychol Sci Pract. 2004;11(2):138-42. doi: 10.1093/clipsy.bph063.
47.Pennebaker J, Seagal J. Forming a story: The health benefits of narrative. J Clin Psychol. 1999;55(10):1243-54. doi: 10.1002/(sici)1097-4679(199910)55:10%3C1243::aid-jclp6%3E3.0.co;2-n.
48.Batista J, Marinai JC, Gouveia M, Oliveira JT, Gonçalves MM. Write and let go: An online writing program for university students. Front Psychol. 2022;13:874600. doi: 10.3389/fpsyg.2022.874600.
49.Batista J, Silva J, Magalhães C, Ferreira H, Fernández‐Navarro P, Gonçalves MM. Studying psychotherapy change in narrative terms: The innovative moment’s method. Couns Psychother Res. 2020;20(3):442-8. doi: 10.1002/capr.12297.
50.Santos P, Soares L. Narrative therapy in complicated grief: A systematic literature review. J Chem Can Res. 2024;2(3):1-12. doi: 10.61440/JCCR.2024.v2.13.
51.Paiva TC, Faria AL, Soares L. Therapeutic writing and the grieving process of mothers who experienced early pregnancy loss—narrative wellbeing. J Poetry Ther. 2024;38(2):88-114. doi: 10.1080/08893675.2024.2376105.
52.Leal T, Soares L. Therapeutic writing in palliative care: A systematic review—A death free of tubes with narrative communication skills. J Poetry Ther. 2024;1-20. doi: 10.1080/08893675.2024.2413571.
53.Kingau NW, Rhoda A, Louw QA, Nizeyimana E. The impact of stroke support groups on stroke patients and their caregivers. Rehabil Dev Health Syst. 2024;1(1):a9. doi: 10.4102/radhs.v1i1.9.
54.World Health Organization. Global Observatory for eHealth. 2024. Available from: https://www.who.int/observatories/global-observatory-for-ehealth. Accessed on 28 Aug 2025.
55.World Health Organization. WHO EMRO|eHealth|Health Topics. World Health Organization—Regional Office for the Eastern Mediterranean. 2023. Available from: https://www.emro.who.int/health-topics/ehealth/. Accessed on 28 Aug 2025.
56.Clancy B, Bonevski B, English C, Baker AL, Turner A, Magin P, et al. Access to and use of internet and social media by low-morbidity stroke survivors participating in a national web-based secondary stroke prevention trial: Cross-sectional survey. J Med Internet Res. 2022;24(5):e33291. doi: 10.2196/33291.
57.Mahmood A, Deshmukh A, Natarajan M, Marsden D, Vyslysel G, Padickaparambil S, et al. Developing strategies to support home-based exercise adherence after stroke: A Delphi consensus. BMJ Open. 2022;12(1):e055946. doi: 10.1136/bmjopen-2021-055946.
58.Wang R, Cao L, He Y, Feng L. The effectiveness of telerehabilitation on independence, balance, disability and function in stroke patients: A meta-analysis of randomized controlled trials. Neurol Asia. 2024;29(2):351-63. doi: 10.54029/2024pnp.
59.Fama ME, Hatfield B, Coyle S, Richman MS, Georgeadis AC. The impact of the COVID-19 public health crisis on communication and quality of life: Insights from a community of stroke and brain trauma survivors. Am J Speech Lang Pathol. 2021;30(4):1805-18. doi: 10.1044/2021_ajslp-20-00297.
60.Lamont RA, Calitri R, Mounce LTA, Hollands L, Dean SG, Code C, et al. Shared social identity and perceived social support among stroke groups during the COVID‐19 pandemic: Relationship with psychosocial health. Appl Psychol Health Wellbeing. 2022;15(1):172-92. doi: 10.1111/aphw.12348.
61.Singh H, Nelson ML, Premnazeer M, Haghayegh AT, Munce S, Sperling C, et al. Peer support provider and recipients’ perspectives on compassion in virtual peer support stroke programs: “you cannot really be supportive without compassion.” PLoS ONE. 2024;19(10):e0309148. doi: 10.1371/journal.pone.0309148.
62.Giordano V, Koch H, Godoy-Santos A, Dias Belangero W, Esteves Santos Pires R, Labronici P. WhatsApp messenger as an adjunctive tool for telemedicine: An overview. Interact J Med Res. 2017;6(2):e6214. doi: 10.2196/ijmr.6214.
63.Marshall J, Booth T, Devane N, Galliers J, Greenwood H, Hilari K, et al. Evaluating the benefits of aphasia intervention delivered in virtual reality: Results of a quasi-randomized study. PLoS ONE. 2016;11(8):e0160381. doi: 10.1371/journal.pone.0160381.
64.Baker C, Worrall L, Rose M, Ryan B. “It was dark”: The experiences and preferences of people with aphasia to manage mood changes and depression. Aphasiology. 2019;34(1):1-28. doi: 10.1080/02687038.2019.1673304.
65.Azioz JH, Strong KA, Archer B, Douglas NF, Simmons-Mackie N, Worrall L. Friendship matters: A research agenda for aphasia. Aphasiology. 2021;36(3):1-20. doi: 10.1080/02687038.2021.1873908.
66.Cruice M, Ten Kate O. Clinicians’ views and practices in quality of life in aphasia rehabilitation: A preliminary study. Aphasiology. 2019;33(11):1293-318. doi: 10.1080/02687038.2019.1632787.
67.Strong KA. Supporting mental health in people living with aphasia: A call to action. Perspect ASHA Spec Interest Groups. 2023;8(6):1321-34. doi: 10.1044/2023_persp-23-00042.
68.Dipper L, Devane N, Barnard R, Botting N, Boyle M, Cockayne L, et al. The remote LUNA study is a feasibility randomized waitlist-controlled trial of a personalized multi-level language treatment for people with aphasia. PLoS ONE. 2024;19(6):e0304385. doi: 10.1371/journal.pone.0304385.
69.Bacon K, Marshall J, Caute A, Monnelly K, Cruice M, Moutou C, et al. Treatment fidelity of technology‐enhanced reading therapy (Communicate) for people with aphasia. Int J Lang Commun Disord. 2021;56(6):1114-31. doi: 10.1111/1460-6984.12637.
70.Cheng BBY, Ryan BJ, Copland DA, Wallace SJ. Prognostication in post-stroke aphasia: Perspectives of people with aphasia on receiving information about recovery. Neuropsychol Rehabil. 2022;33(5):1-32. doi: 10.1080/09602011.2022.2051565.

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Micaela Rodrigues,Inês dos Santos Silva,Luísa Soares*. Connections that Care: WhatsApp as a Support Space for Stroke Survivors [J]. Advances in Geriatric Medicine and Research. 2025; 7; (3). - .

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